How do you fight?

As you know, in May we got the very unexpected news that my husband has ALS. Besides the fear, uncertainty, logistics, the massive learning curve, and the stresses of the parking garages, there were the cold, clinical statements of “There is no cure.”

We immediately started asking questions about other ways to help improve health, such as acupuncture, nutrition, massage, and others. Each time, we were greeted with, “It can’t hurt, but…” The voice would trail off, giving the excruciatingly clear message that those things wouldn’t hurt, but weren’t going to help either, at least in those experts’ minds.

That didn’t sit well with me. We need some way of trying to fight this disease! So, we are fighting. Reasonable, regular exercise? Yes! A high-fate Keto diet based upon the one used to treat other neurological diseases? Yes. Acupuncture? Yes. Meditation? Absolutely. Work on reducing stress? Yes.

We get that there isn’t a traditional Western medicine cure, at least not yet. But there are a lot of other things we can try to improve overall health and work to give us time for a cure to be developed, and improve the overall quality of life.

For our dear friends and family, you see something online or hear of someone who is (or did) beat the odds in terms of longevity with ALS, send us the information! We love hearing ideas and will research them right away. Never think that asking a question or suggesting things will bother us, just like when we love hearing Sam’s name, when people face straight-on with us, it helps. And every scrap of an idea helps us fight!

We love you all, we appreciate you every single day.

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